Wednesday, February 17, 2010

An MS Moment


As many of you know I live with a disease called MS. Today I am feeling my MS as I struggle with a sinus infection - it seems as though I can't get sick like "normal" people....when I get sick it always goes straight to a full fledge infection. Last night I was so sick I was delirous - I think Joel was a bit annoyed or ammused! Anyway - let me get to the point. There is five kinds of MS - I have the relapsing remitting form. Some forms are more serious some are less. Mine is considered moderate - for that I am thankful, however that could change anyday and for that I must be prepared.


I am writing this email not to let you know about my MS - but to help educate the people around me. I have another dear friend who is a few years younger than me and has been suffering with this disease for several years longer than I. She struggles at times to walk, she is not able to work, her life has been completely altered by this debilitating disease. Although with many people that have this disease - you can't tell by looking at her. She looks just like any other trendy 30 year old - hence why this disease is called the invisible disease.


Today my friend made a bumper sticker - that is pictured below. My friend has been given dirty looks, received rude comments, and finger pointing when she gets out of her car that she parked in the handicapped spot. If she had to park far away from the store - she wouldn't make it back to the car - you see if we can conserve our energy - we can last longer each day. It is not just fatigue - it is like your body is a sand bag. I hurt for my friend who has received such looks and comments from people who have no idea.


I guess my point is this - we need to stop judging people on their appearance - because by just judging on the outward appearance we are going to fall short every time. But the other thing that I am learning from this is that I need to educate people. So pass this on - tell other people - and next time you see someone pull into that handicapped parking spot - be slow to judge and quick to assist - you have no idea what that person may be struggling with day in and day out!


This my friends is one of the reasons that I dread the day I have to get my handicap placard - because I don't want to be judged - sad isn't it - so many people that could benefit from the closer parking will never take that step for fear of what people will say or assume!


pt-bumpersticker.jpg

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